There are some options for treatment of Spina Bifida and the location of the gap in the back often dictates what kind of adaptive aids or equipment a child with myelomeningocele will need. Those with a gap high on the spinal column and more extensive paralysis often will need to use a wheelchair, and those with a gap lower on the back may be able to manage with crutches, leg braces, or walkers.
It is a huge adjustment for parents of children with spina bifida but they do receive support from a medical team that may include several doctors (such as neurosurgeons, urologists, orthopaedic surgeons, rehabilitation specialists, and general pediatricians), a nurse practitioner, physical and occupational therapists, and a social worker.
The goal is to create a lifestyle for the child and family in which the disability interferes as little as possible with normal everyday activities. From what I have seen the support is superb and the efforts made on behalf of a child suffering from spina bifida unequalled.
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