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Old 09-28-2010, 08:05 AM
robT robT is offline
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It us worth noting that children who are born suffering from spina bifida occulta seldom need treatment.
In cases of spina bifida manifesta, treatment depends on the type of spina bifida and its severity.
Babies with meningocele usually have an operation during infancy in which doctors push the meninges back and close the hole in the vertebrae. Many will then have no other health problems later unless there is nerve tissue involved with the sac.
Babies with myelomeningocele need more immediate attention and often have surgery within the first 1 to 2 days after birth. During this first surgery, doctors push the spine back into the vertebrae and close the hole to prevent infection and protect the spine.
A baby who also has hydrocephalus will need an operation to place a shunt in the brain. The shunt is a thin tube that helps to relieve pressure on the brain by draining and diverting extra fluid.
In addition, some children need subsequent surgeries to manage problems with their feet, hips, or spine.
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Old 09-29-2010, 09:14 AM
Saffy Saffy is offline
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There are some options for treatment of Spina Bifida and the location of the gap in the back often dictates what kind of adaptive aids or equipment a child with myelomeningocele will need. Those with a gap high on the spinal column and more extensive paralysis often will need to use a wheelchair, and those with a gap lower on the back may be able to manage with crutches, leg braces, or walkers.

It is a huge adjustment for parents of children with spina bifida but they do receive support from a medical team that may include several doctors (such as neurosurgeons, urologists, orthopaedic surgeons, rehabilitation specialists, and general pediatricians), a nurse practitioner, physical and occupational therapists, and a social worker.

The goal is to create a lifestyle for the child and family in which the disability interferes as little as possible with normal everyday activities. From what I have seen the support is superb and the efforts made on behalf of a child suffering from spina bifida unequalled.
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